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I Took an Autism Screening. Now What?

Iris Chen, OTR/L, MOT·Occupational Therapist · Sensory Integration Certified· 8 min
Iris Chen, OTR/L, MOT
Iris Chen, OTR/L, MOT
Occupational Therapist · Sensory Integration Certified
Iris is a registered Occupational Therapist (NBCOT cert. #1147892) with a Master of Occupational Therapy from Boston University. She co-runs a multidisciplinary adult-autism clinic and has guided several hundred adults through the journey between an initial screening and (where chosen) a formal evaluation.

Online screenings — including this one — are not diagnostic instruments. What they're good at is giving you a structured language for things you may already have been noticing about yourself. Treat the result as a hypothesis worth investigating, not as a conclusion.

If your results resonate, you have a few possible next moves. The simplest is to read more, sit with the categories that scored high, and notice over the coming weeks where they match your lived experience. Many people find a small handful of well-chosen books and a few peer communities does more work than any single conversation could. The 'Aspergirls' tradition of writing — Tony Attwood, Sarah Hendrickx, Devon Price — is a reasonable starting library.

Some people find that's enough. Others want to pursue a formal evaluation by a clinician experienced in adult autism — particularly if the results would unlock workplace accommodations, mental health support, or simply a clearer sense of self. In the UK, evaluation is available through the NHS adult-autism pathway (waiting lists are unfortunately long; the Right to Choose route can reduce them). In the US, look for psychologists or psychiatrists who specifically list 'adult autism assessment' in their scope of practice; ADOS-2 administration training is a useful signal of seriousness.

Be prepared for a formal evaluation to feel like an extended structured conversation more than a test. The clinician will ask about childhood, current daily functioning, sensory experience, social patterns, and often request a developmental history from a parent or sibling if one is available. The good clinicians frame the conversation as collaborative, not adversarial.

Two cautions. First, evaluation is not the only valid path. Many adults identify as autistic without formal diagnosis and live well; self-identification is recognised within autistic community spaces and increasingly by the research literature. Pursue formal evaluation if it will unlock something specific you need — accommodations, support, certainty — rather than as the only legitimate way to claim the identity. Second, expect emotional aftermath either way. A new lens on yourself, even a clarifying one, takes time to settle.

Whichever path you choose, the most useful thing a screening can do is help you stop fighting your own wiring and start designing a life that works with it. That is, in our clinic's experience, the change that does the heavy lifting on long-term wellbeing — not the diagnosis itself, but what you do with the picture you now have.

References
  1. Lewis, L.F. (2017). A mixed methods study of barriers to formal diagnosis of autism spectrum disorder in adults. JADD, 47(8).
  2. Lai, M.-C., & Baron-Cohen, S. (2015). Identifying the lost generation of adults with autism spectrum conditions. The Lancet Psychiatry, 2(11).
  3. Crane, L., et al. (2018). Experiences of autism diagnosis: A survey of over 1000 parents in the UK. Autism, 22(5).

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